Julie Dennison - Living with Epilepsy

Living with Epilepsy is a personal guide
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Sample 'thank you' letters from some of the children who have heard my 'Living with Epilepsy' talk.

Note: My junior schools talk is accompanied by a short video, produced by the National Society for Epilepsy, featuring Rolf Harris. I arrive dressed as a witch and explain that people with epilepsy may well have been killed as witches hundreds of years ago; I then remove the costume to show that I am like everyone else in reality. This grabs the children's attention straight away.

Letter extracts are reproduced by kind permission of Giles Junior School, Stevenage.

Epilepsy margin by Emma

 


Epilepsy margin by Lacey

Harry: Thank you for your fantastic visit . . . I liked the video but I preferred you talking about your life . . .

Alex: I'm still having hysterics over that Rolf Harris video . . . Before you came in I didn't even know that epilepsy was a word, I even learned that one of my classmates has epilepsy.

Bodan: Now I know about most of the seizures and what I should do when someone has a tonic clonic drop.

Adam: Please come again and I promise you will have a lot of questions.

Conor: I remember when you said there were 40,000,000 people who have epilepsy round the world.

Watching the video by Tynan Julie as a witch by Sophie Witch by Robyn

Corey: I liked the video from Rolf Harris. It was a little bit funny, but you were funnier when you came in dressed a as a witch.

Nguya: I wish you have stayed for a longer time.

Lacey: It made me feel very happy when you said that children were more relaxed and helpful when someone was having a fit, than what adults were.

Karl: I loved hearing about your life and when you had a lot of children helping you.

Liam: I liked your book it was very interesting.

Samuel: I learnt about if something goes wrong you should always stay calm if you're with someone who has epilepsy.

Amy: It made me think how I could help someone who was epileptic.

Ben: Do epileptic people close their eyes whe they have a fit?

Rebecca: When you first walked into our class dressed as a witch, my friends and I thought it was funny but scary.

Dave: When you had babies, you had to feed them in their prams . . . so if you had a fit your baby wouldn't get hurt.

Sam: I have heard a lot about suffering with epilepsy and now I understand it more. . . . It inspired me to hear about your job interviews.

Aaron: You were really fun.

Pyramids by Michael Helicopter and balloon by Dave

Rebekah: You inspire me with how you can fly in a hot air balloon, fly around London in a helicopter and go to Egypt to see the Pyramids.

Thomas: My Mum's got epilepsy, too. She has to take tablets every night.

Ryan: You told me what people years ago thought of people who had epilepsy.

Ryan: The main things I learnt . . . were that you had the same dreams as anyone else and that you could achieve the same as anyone else.

Jack: I am not used to visitors who come in dressed as witches. . . I was absolutely shocked when you tod us about having 40 to 50 seizures a day.

Claudia: I loved the story about . . . how you cooked . . . The pan went on the back stove so if you had a seizure you would not spill hot water over yourself.

Robyn: I could not stand it if I had epilepsy, I would go bonkers.

Anon: I enjoyed the amusing story about the many children who looked after you.

Pedro: The whole year 5 are thankful for you coming in. . . . I realised that when the video was going you had two [petit mal] seizures.

Ellis: You kept me interested when you dressed up as a witch.

Charlotte: When you said how many people had epilepsy I was speechless.

. . . and from their teacher: "We all learnt so much from your informative and interesting talk."

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